We are a family caregiver-led group promoting family caregivers local support groups and encouraging self-advocacy for them through educating them.
A society which recognizes and respects the family caregiver role by providing resources and support, making this valuable job easier for the caregiver.
To provide free education for family caregivers on their journey. To advocate for changes to the health care system improving the life of caregivers.
Respect – the privacy and story of the caregiver.
Resourcefulness – in addressing caregiver issues through advancing recognition and resolutions within the health care system.
Initiative – ask questions and suggest improvements.
Carole Ann Alloway is a retired Human Resources Manager, mother of four and grandmother of seven. Six years ago, Carole Ann became a full time caregiver for her husband, Bill, who had nine difficult operations within a 5 year period, while also managing his other health issues. She has witnessed first-hand the gaps in the health care and home care systems. She receives invitations to speak at health conferences, hospitals, home care, etc. to share her experience while raising awareness of the importance of making the caregiver an integral part of the health care team. Carole Ann works closely with The Change Foundation, Health Quality Ontario, Ministry of Health and Long Term Care and various CCACs. Carole Ann recently won a Heroes in the Home award from Toronto CCAC.
Sara Shearkhani, Co-Founder
Sara is a Research Assistant and a PhD student at Institute of Health Policy, Management and Evaluation of University of Toronto. Her lived experience as a caregiver influenced her research. She holds a certificate in Patient and Community engagement Research (PaCER) from University of Calgary which she focused on experiences of patients and caregivers as couples. She is an advisor at Health Quality Ontario Advisory Council. Sara was recognized as one of the faces of change in Ontario in 2015.
How did Family Caregivers Voice start?
Two years into her graduate studies, Sara suddenly became her husband’s primary caregiver following his brain cancer diagnosis in 2012. After expressing her views on caregiving in a 2014 article published in the Globe and Mail, she received many sympathetic emails from like-minded and frustrated family caregivers, including one particular caregiver named Carole Ann Alloway, with whom she eventually created Family Caregiver Voice. Carole Ann Alloway is a retired Human Resources Manager, mother of four and grandmother of seven. Six years ago, Carole Ann became a full time caregiver for her husband, Bill, who had nine difficult operations within a 5 year period, while also managing his other health issues. She has witnessed first-hand the gaps in the health care and home care systems. Together, Sara and Carole Ann have co-founded Family Caregivers Voice. FCV is a caregiver-led group that is committed to educating family caregivers on their journey using the invaluable experience of other family caregivers as mentors. They also work with different organizations, such as The Change Foundation, Health Quality Ontario, OACCAC, Patients Canada, Ontario Caregiver Coalition and others as advisors.
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