PaCER Toronto

 

With the publication of the final report by Saint Elizabeth Health Care, PaCER Toronto Project ends.

 

July 2016

 

………………………..

PaCER Toronto is presenting a poster at Quality Forum 2016 on February 25th, 2016.

                     “Click on the poster below to see it in high resolution”

Final Poster for couples- Toronto PaCER teamv6

 

 

 

 

 

 

 

 

 

 

 

 

 

February 10, 2016

 

Sara Shear

 

 

……………………………………………………………………………………………………………………………………………………………………………………………….

Meet PaCER Toronto Team

FB_IMG_1447174079071

From right to left Annette McKinnon (Intern), Alies Maybee (Intern), Nancy Marlett (Supervisor), Sara Shearkhani (Intern Lead)

 

Meet PaCER Toronto’s Supervisors

FB_IMG_1447174072010

 

From Left to Right: Svetlana Shklarove (Co-Supervisor), Sara Shearkhani (Intern Lead), ALies Maybee (Intern), Annette McKinnon (Intern), Marlyn Gill (PaCER Graduate)

…………………………………………………………………………………………………………

PaCER Toronto is holding its last Focus Group , Reflect Focus Group, On November 28th, 2015.

Thanks to our supporters Saint Elizabeth H3althcare and Wellspring Downtown Toronto.

 

Sara Shearkhani

November 2015

…………………………………………………………………………………………………………..

“Uncovering the Experiences of Patients and Caregivers as Couples” was accepted for presentation (Poster Presentation) at 2016 Quality Forum.

 

Sara Shearkhani

 

November 2015

…………………………………………………………………………………………………………….

PaCER Toronto’s research was presented at the 21st Qualitative Health Research Conference in Toronto.

 

It was called ground breaking and inspiring research.

 

Sara Shearkhani

October 2015

 

…………………………………………………………………………………..

Set Focus Group

PaCER Toronto held its first Test Focus Group on Wednesday, April 1st, 2015 at Wellspring downtown. The topic was “Uncovering Experience of Patients and Caregiver as Couples”. The information we gathered is just invaluable. I will write comprehensively about the whole 5 hours of our conversation but for now here are our photos.

I also can tell you that I do not think I will never feel the same way about running a focus group as this one was my first one; there is something with all firsts as you know better than me 😉 This was my first and best focus group.

Thank you for the kind assistance and support of our participants, St. Elizabeth Healthcare and Wellspring Downtown:)

IMG_20150401_084307 IMG_20150401_084647 IMG_20150401_090755 IMG_20150401_092817 IMG_20150401_090742 IMG_20150401_090748

IMG_20150401_123833 IMG_20150401_124443 IMG_20150401_130323 IMG_20150401_124529 IMG_20150401_130347 IMG_20150401_153333 IMG_20150401_124521

 

Sara Shearkhani

Fall 2015

…………………………………………………………………………………………………………………

We are recruiting:

Click here to see our recruitment video!

Download  the poster here:  EPCC-RecruitmentPoster-May-27-2015

Screenshot (35)

A study by PaCER (Patient and Community Engagement  Research and Sponsored by Saint Elizabeth Health Care

Uncovering the Experiences of Patients and Caregivers as Couples

 

Are you taking care of your husband, your wife or your partner?

 

Is your wife, your husband or your partner taking care of you since you became ill or injured?

 

Join us and share your experience as a member of a couple dealing with an illness or injury!

Share your experience with us!

 

This study is conducted by

Patient and Community Engagement Researchers (PaCERs) Toronto Team – trained researchers with patient and caregiver experience.

We invite you to participate in a focus group, an interview, or both!

Focus Group: Time commitment 5 hours, free lunch will be provided

Interview: Time commitment 1 hour

Curious, interested? Do you live in Greater Toronto Area?

Contact Sara Shearkhani at 647 542 5628 or SaraShearkhani@saintelizabeth.com

The University of Calgary Conjoint Health Research Ethics Board has approved this research study. Ethics ID: REB15-1416

The Mackenzie Health Research Ethics Board has approved this research study.

 

Sara Shearkhani

August 29, 2015

…………………………………………………………………….

PaCER received its Ethics Approval by both Mackenzie Health in Toronto and Conjoint Health Research Ethics Board of University of Calgary over the summer, 2015. PaCER Toronto tean started recruitment immediately.

The team face difficulties recruiting patients and caregivers mainly because no other institution were able to promote the study as each healthcare facility requires its own Ethics process which means more time waiting and less time recruiting.

But we did it!

 

Sara Shearkhani

Summer 2015

…………………………………………………………………………………………………………………………….

We finally finalized our proposal and send it for Ethics submission, Our project is called “Uncovering the Experiences of Patients and Caregivers as Couples”.

 

Looking forward to hear from Ethics.

 

Sara Shearkhani

June 4th, 2015

 

……………………………………………………………………………………………………..

Literature Review

I think we, PaCER Toronto, finally made it; how do I know? Well, for starter, we finally landed on a title: Uncovering Experience of Patients and Caregivers as Couples!

We also are almost done with the background part of our proposal and believe me you, I do not think I can read it and review it again. at this point all I can see and undrestand from those 4 pafes is blah, blah, blah….

Anyway, here is the Wordle of our background on Uncovering Experiences of Patients and Caregivers as Couples (Wordle was @anetto Annette’s idea):

 

wordle 5

 

Sara Shearkhani

March 27, 2015

…………………………………………………………………………..

As the  Lead for PaCER Toronto I am proud to announce that my hard work finally paid and we are luck to have St. Elizabeth as our sponsor; we, as patients/caregivers trained by Dr. Nancy Marlett of Calgary and her team, will work on the topic of Spousal Patient-Caregiver Dyad and Dr. Paul Holyoke, Director of Research of St. Elizabeth will be our field mentor.

 

Glad to be part of this :)

March/10/2015

Sara Shearkhani

Lead for PaCER Toronto

Co-Founder of Family Caregivers Voice

………………………………………………………………

#4

We hold our first assignment meeting as a group on Friday, Feb 13th at North York Center’s Food Court. Our assumption was on role playing; we would take turn to be a speaker, listener or observer and then we needed to reflect on our thoughts and feelings playing that certain role.

It went much better than I expected. I was at my best when I was an observer; a good listener and an okay speaker! We had mixed but almost similar feelings and thoughts about the roles. For example, we all felt being observed when speaking and listening make us self-conscious and uncomfortable but we all managed to ignore the observer after some time. We believed being a listener was very hard for two reasons: 1. We were not supposed to listen openly without over reaction and encouragement and it was very hard specially if the story was very close to home 2. We needed to reflect on what the speaker said and make it all about the speaker by telling her how the story impacted us and changed our perspective; believe me it was really hard to do!

Being a speaker seemed to be the easiest job; however, I, for example, was very self-aware when I was speaking as English is my second language and like Annette I was comparing myself with Anitta who is a great speaker and that made speaking harder for both me and Annette. I think, even though Anitta is a great speaker, not making the story a motivational story was a challenge for her.

As observer, trying not to be engaged in the conversation was a challenge for the team as well as being worked about getting everything down.

 

All in all, it was a great exercise 🙂

Sara

Saturday, Feb 14

 

……………………………………………………………….

Third

Last night we had such an interesting class; we learned to unlearn. We were told to be story tellers without being motivational speakers. We were told to listen and reflect on the speaker’s story without talking about our experience but instead talking how the story impacted us or changed our point of view.

This is hard stuff 😉

Feb-5-2015

Sara

……………………………………………………..

Second

When I asked Nancy to take me in, I absolutely did not anticipate that it could get this hard. Then again, when I recruited patients to start our work, I thought the hard part is over; well, I did forget about the storming phase of an infant group. I suppose that I am learning. Will I turn into a leader at the end of this journey?

I hope so.

Jan-31-2015

Sara

………………………………………………………….

First

This past Wednesday, 1/14/2015, we held our first Patient and Community Engagement Research (PaCER) with guidance and support of PaCER Calgary specially Dr. Nancy Marlett and Dr. Svetlana Shklarov. The class was held in my kitchen :):)

As I was looking at the members of PaCER Toronto in my kitchen and around my very uncomfortable dining table, I could not help but think of September 2014 when I was the only person from Toronto participating in this novel program. I needed to recruit more patients/caregivers to be able to develop a PaCER Toronto team; I needed to find a sponsor who could provide me with a home for PaCER. Of course I had the support of PaCER Calgary but I was alone and that made it very hard; the journey seemed impossible. I knocked on many doors but the idea of patients/caregivers conduction research sounded…I do not know…” out of reach”! But, on Wednesday…

I was looking at this group of intelligent and dedicated women and I could not help but to feel proud. I know the we will face lots of obstacles; I know we will face our shortcomings and we might even fail but we also can get back on our feet and start over.

I cannot wait to someday share our story with other patients, caregivers and healthcare professionals and say: “Now, did you know, we started in my kitchen?!”

 

Sara Shearkhani

Jan/17/2015

 

………………………………………………………………..

 

Zero

 

How PaCER Toronto Came to Life?

 

It was the summer of 2014. After  two years my husband seemed to be stable; chemo had stabilized the tumour! Finally it felt that I had sometime to myself and to think about my future. The only thing I could imaging for myself was going back to school but I wanted to change my field of study from Economics to a health-related field.

Through my work, I came across a group in Calgary called PaCER (Patient and Community Engagement Research). The program said that they train patients and caregivers to become qualitative researchers. I contacted them. I told them my story and that I cannot go to Calgary. I told them that I just do not want the certificate but I need to take some graduate courses.

So I applied for two courses at UofC; after I received the acceptance letter, my supervisor and I defined my project. I was supposed to attend the classes via conference call in Fall and recruit patients and caregivers by January and try to find a sponsor by Summer.

The group was shaped by January. And I found a sponsor by May.

 

That is how PaCER came to life .

 

Sara Shearkhani

Leave a Reply

Your email address will not be published. Required fields are marked *