As a caregiver, I have been involved in several patient/caregiver engagement initiative; some great experiences and others not so much.
I shared my experience with one of my professors, Dr. Don Willison, who is an expert on research ethics. Given his interest in the topic and his current work around ethics of patient engagement in research, he kindly accepted to help me voicing my concerns.
The result, is an opinion piece published in Health Debate. Please read and in case you have similar experiences please do share.